What happens to your facebook when you die? cancer patients share their wishes

NCT ID NCT05035667

First seen Nov 03, 2025 · Last updated Jun 23, 2026 · Updated 34 times

Summary

This study looks at how people with advanced cancer decide what should happen to their social media accounts after they pass away. Researchers at MD Anderson Cancer Center are surveying 117 patients to understand if they've talked to family or friends about managing accounts like Facebook or Instagram. The goal is to learn what patients need and reduce anxiety around this part of end-of-life planning.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • M D Anderson Cancer Center

    Houston, Texas, 77030, United States

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this could help doctors and families better support patients' wishes about their digital legacy, reducing stress around end-of-life decisions.

What could go wrong

This is a small, observational study at one cancer center, so findings may not apply to all patients. It only surveys opinions, not testing a treatment.

Conditions

The condition(s) this trial relates to.

cancer hematopoietic and lymphoid system neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.