Why do some SMA patients miss out on treatment? new study investigates.
NCT ID NCT07223489
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looks at the experiences of 200 adults with spinal muscular atrophy (SMA) to understand how they were diagnosed and treated. Researchers want to find out why some patients are not receiving approved therapies, such as financial or access barriers. The goal is to improve care and help more people get the treatment they need.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for SPINAL MUSCULAR ATROPHY (SMA) are added.
By submitting, you agree to our Terms of use
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
-
MedStar Health Research Institute
RECRUITINGWashinton, District of Columbia, 20010, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Gene therapy hope for SMA kids: early trial launches
- New knee device may help kids with SMA build leg strength
- New VR device aims to make exercise fun for kids with muscle weakness
- Wearable tech monitors SMA babies at home to pinpoint best time for extra treatment
- Summer camp aims to boost strength in kids with SMA
- Can a support group boost confidence for parents of kids with DMD or SMA?