Sickle cell families share views on gene therapy in new study

NCT ID NCT04416178

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study talks to parents and teens with sickle cell disease to learn what they think about genetic research and gene therapy. Researchers will use surveys and interviews to understand concerns and expectations. The goal is to create better educational tools and build trust between families and scientists. No new treatment is being tested here.

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Conditions

The condition(s) this trial relates to.

Hemoglobin SC Disease sickle cell disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • St. Jude Children's Research Hospital

    RECRUITING

    Memphis, Tennessee, 38105, United States

    Contact Email: •••••@•••••

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