New eDiary helps track sickle cell pain and fatigue
NCT ID NCT05407805
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tested an electronic diary for adults with sickle cell disease to track daily symptoms like pain, tiredness, and ability to do usual activities. About 98 participants used the diary for 6 months, and researchers compared those on disease-modifying treatment to those not on any. The goal was to see how well the diary captures real-world experiences of sickle cell crises.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Cohen Children's Medical Center
New Hyde Park, New York, 11040, United States
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Foundation for Sickle Cell Disease Research
Hollywood, Florida, 33024, United States
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Mid-Atlantic Permanente Medical Group Largo Medical Center
Upper Marlboro, Maryland, 20774, United States
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Sanguine Biosciences, Inc.
Waltham, Massachusetts, 02451, United States