New registry aims to unravel severe blood disorders in youth

NCT ID NCT03576742

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This completed registry study followed 80 children and young adults with severe immune cytopenias, including immune thrombocytopenia, autoimmune hemolytic anemia, and Evans syndrome. Researchers observed participants over up to 4 years to improve diagnosis and track the disease course under various treatments. No new treatments were tested; the goal was to gather data to guide future care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could help doctors better diagnose and manage severe immune cytopenias in children and young adults.

What could go wrong

This is an observational study, not a treatment trial. It collects data only and does not test any new therapy, so direct patient benefits are limited.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

aplastic anemia autoimmune hemolytic anemia Evans syndrome inborn error of immunity Myelodysplastic Syndromes pancytopenia Primary Immunodeficiency Diseases Purpura, Thrombocytopenic, Idiopathic thrombocytopenia due to immune destruction

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Pediatric Hematology-Oncology Outpatient Clinic

    Graz, Styria, 8036, Austria