New drug for rare nerve tumors under safety watch in kids
NCT ID NCT05388370
First seen Mar 16, 2026 · Last updated May 14, 2026 · Updated 8 times
Summary
This study tracks the safety of selumetinib, a drug for children with neurofibromatosis type 1 (NF1) who have painful, inoperable nerve tumors. About 124 children aged 3 to 18 across Europe and Israel will be monitored for side effects like heart changes, bone growth issues, muscle problems, liver stress, eye trouble, and delayed puberty. The goal is to better understand real-world risks of this medication.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Vienna, Austria
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Amiens, France
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Angers, France
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Bordeaux, France
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Lille, France
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Lyon, France
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Marseille, France
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Paris, France
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Rennes, France
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Strasbourg, France
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Toulouse, France
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Tours, France
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Vandœuvre-lès-Nancy, France
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Villejuif, France
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Dresden, Germany
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Duisburg, Germany
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Hamburg, Germany
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Hanover, Germany
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München, Germany
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Tübingen, Germany
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Petah Tikva, Israel
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Ramat Gan, Israel
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Tel Aviv, Israel
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Florence, Italy
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Genova, Italy
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Milan, Italy
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Padova, Italy
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Pavia, Italy
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Roma, Italy
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Torino, Italy
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Trieste, Italy
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Rotterdam, Netherlands
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Lisbon, Portugal
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Porto, Portugal
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Barcelona, Spain
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Madrid, Spain
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Málaga, Spain
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Santiago de Compostela, Spain
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Seville, Spain
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Basel, Switzerland
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Bern, Switzerland
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Lausanne, Switzerland
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Sankt Gallen, Switzerland
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London, United Kingdom
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Manchester, United Kingdom
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Newcastle upon Tyne, United Kingdom
Conditions
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