New tool aims to help IPF patients better manage their own care

NCT ID NCT07139925

Ongoing Knowledge-focused Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS Source: ClinicalTrials.gov ↗

First seen Jun 26, 2026 · Last updated Jun 26, 2026

Summary

This study is testing whether a questionnaire originally designed for COPD patients can be adapted to measure self-care in people with idiopathic pulmonary fibrosis (IPF). Researchers will enroll 156 adults with IPF to see if the tool accurately captures how well patients manage their condition. The goal is to give doctors and patients a simple way to track self-care and improve daily disease management.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this could provide doctors and patients with a reliable way to measure self-care in IPF, potentially leading to better disease management and quality of life.
What could go wrong: This is an observational validation study, not a treatment trial. The tool may not prove accurate or useful in all IPF patients, and it does not directly improve health outcomes.

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Conditions

The condition(s) this trial relates to.

idiopathic pulmonary fibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

IPF

Contacts and locations

Locations

Fondazione Policlinico Universitario Agostino Gemelli

Roma, Roma, 00168, Italy

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