New registry tracks genetic heart disease risk in families
NCT ID NCT05974644
First seen Nov 01, 2025 · Last updated Apr 29, 2026 · Updated 22 times
Summary
This study creates a registry of 1,000 people who carry a genetic mutation for hereditary ATTR amyloidosis, a disease that can damage the heart and nerves. Researchers will follow both symptom-free carriers and those already diagnosed to see who develops symptoms, who needs a heart transplant, or who dies from the disease. The goal is to better understand how the condition progresses over time.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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