Simple blood draw from home could spot early signs of inherited dementia
NCT ID NCT04516499
First seen Nov 01, 2025 · Last updated May 15, 2026 · Updated 28 times
Summary
This study follows 342 people from families with genetic mutations linked to frontotemporal dementia (FTD), along with a control group. Participants provide blood samples remotely every 3 months for 3 years to measure a protein called neurofilament light chain (NfL), which may signal nerve damage. The goal is to learn how NfL levels change over time in people at risk, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Columbia University
New York, New York, 10032, United States
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Johns Hopkins University School of Medicine
Baltimore, Maryland, 21287, United States
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Massachusetts General Hospital
Charlestown, Massachusetts, 02129, United States
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Mayo Clinic
Rochester, Minnesota, 55905, United States
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Mayo Clinic Florida
Jacksonville, Florida, 32224, United States
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University of California, San Francisco
San Francisco, California, 94158, United States
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University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
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Washington University in St. Louis
St Louis, Missouri, 63110, United States
Conditions
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