New study aims to speed up CF drug development for those without modulators

NCT ID NCT06504589

Recruiting now Knowledge-focused Sponsor: Nicole Hamblett Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is for people with cystic fibrosis (CF) who do not take CFTR modulators. Researchers will collect health information and samples over 12 months from 400 participants aged 12 and older. The goal is to use this data to design better clinical trials and develop new treatments for this group. Participants will also learn what it's like to be in a research study.

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Conditions

The condition(s) this trial relates to.

cystic fibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CYSTIC FIBROSIS

Contacts and locations

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Locations

Adult Cystic Fibrosis Center at the University of Utah
RECRUITING

Salt Lake City, Utah, 84112, United States
Atrium Health Wake Forest Baptist
RECRUITING

Winston-Salem, North Carolina, 27157, United States
Augusta University
RECRUITING

Augusta, Georgia, 30912, United States
Baylor College of Medicine
RECRUITING

Houston, Texas, 77030, United States
Billings Clinic
RECRUITING

Billings, Montana, 59101, United States
Boston Children's Hospital
RECRUITING

Boston, Massachusetts, 02115, United States
Central Florida Pulmonary Group
RECRUITING

Orlando, Florida, 32803, United States
Children's Healthcare of Atlanta and Emory University
RECRUITING

Atlanta, Georgia, 30329, United States
Children's Hospital Colorado
RECRUITING

Aurora, Colorado, 80045, United States
Children's Hospital of Philadelphia
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
Childrens Hospital Los Angeles
RECRUITING

Los Angeles, California, 90027, United States
Cincinnati Children's Hospital Medical Center
RECRUITING

Cincinnati, Ohio, 45229, United States
Cleveland Clinic Cystic Fibrosis Program
NOT_YET_RECRUITING

Cleveland, Ohio, 44195, United States
Cohen Children's Medical Center of New York
RECRUITING

New Hyde Park, New York, 11042, United States
Columbia University Cystic Fibrosis Program
RECRUITING

New York, New York, 10032, United States
Cook Children's Medical Center
RECRUITING

Fort Worth, Texas, 76104, United States
Corewell Health Helen DeVos
RECRUITING

Grand Rapids, Michigan, 49503, United States
Dayton Children's Hospital
RECRUITING

Dayton, Ohio, 45404, United States
Dell Children's Medical Center of Central Texas
RECRUITING

Austin, Texas, 78723, United States
Hershey Medical Center Pennsylvania State University
RECRUITING

Hershey, Pennsylvania, 17033, United States
Inova L.J. Murphy Pediatric CF Program
RECRUITING

Fairfax, Virginia, 22031, United States
John Hopkins Hospital
NOT_YET_RECRUITING

Baltimore, Maryland, 21287, United States
Massachusetts General Hospital
RECRUITING

Boston, Massachusetts, 02114, United States
Medical University of South Carolina
RECRUITING

Charleston, South Carolina, 29425, United States
Morristown Medical Center
RECRUITING

Morristown, New Jersey, 07960, United States
National Jewish Health
RECRUITING

Denver, Colorado, 80206, United States
Nationwide Children's Hospital
RECRUITING

Columbus, Ohio, 43205, United States
New York Medical College at Westchester Medical Center
RECRUITING

Valhalla, New York, 10595, United States
Northwestern University
RECRUITING

Chicago, Illinois, 60611, United States
Oregon Health & Sciences University
RECRUITING

Portland, Oregon, 97239, United States
Phoenix Children's Hospital
RECRUITING

Phoenix, Arizona, 85016, United States
Prisma Health Children's Hospital - Midlands
RECRUITING

Columbia, South Carolina, 29203, United States
Providence Medical Group, Cystic Fibrosis Clinic
RECRUITING

Spokane, Washington, 99204, United States
Rainbow Babies and Children's Hospital/University Hospitals Cleveland Medical Center
RECRUITING

Cleveland, Ohio, 44106, United States

Contact Email: •••••@•••••
Riley Hospital for Children
RECRUITING

Indianapolis, Indiana, 46202, United States
Saint Luke's Cystic Fibrosis Center of Idaho
RECRUITING

Boise, Idaho, 83702, United States
Seattle Children's Hospital
RECRUITING

Seattle, Washington, 98105, United States
Stanford University Medical Center
RECRUITING

Palo Alto, California, 94304, United States
Tampa General Hospital
RECRUITING

Tampa, Florida, 33606, United States
The Children's Hospital Alabama, University of Alabama at Birmingham
RECRUITING

Birmingham, Alabama, 35233, United States
The Cystic Fibrosis Center of Western New York
NOT_YET_RECRUITING

Buffalo, New York, 14203, United States
The Minnesota Cystic Fibrosis Center
RECRUITING

Minneapolis, Minnesota, 55455, United States
Tucson Cystic Fibrosis Center
RECRUITING

Tucson, Arizona, 85724, United States
Tulane University
RECRUITING

Metairie, Louisiana, 70001, United States
University of Arkansas for Medical Sciences
RECRUITING

Little Rock, Arkansas, 72205, United States
University of California San Diego
NOT_YET_RECRUITING

La Jolla, California, 92093, United States
University of California, San Francisco - Adult Center
RECRUITING

San Francisco, California, 94143, United States
University of California, San Francisco - Peds Center
RECRUITING

San Francisco, California, 94158, United States
University of Florida
RECRUITING

Gainesville, Florida, 32610, United States
University of Kansas Medical Center
RECRUITING

Kansas City, Kansas, 66160, United States
University of Kentucky
RECRUITING

Lexington, Kentucky, 40506, United States
University of Massachusetts Memorial Health Care
RECRUITING

Worcester, Massachusetts, 01655, United States
University of Miami
RECRUITING

Miami, Florida, 33136, United States
University of Michigan, Michigan Medicine
RECRUITING

Ann Arbor, Michigan, 48109, United States
University of Nebraska Medical Center
RECRUITING

Omaha, Nebraska, 69198, United States
University of North Carolina at Chapel Hill
RECRUITING

Chapel Hill, North Carolina, 27599, United States
University of Pennsylvania
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
University of Pittsburgh Medical Center
RECRUITING

Pittsburgh, Pennsylvania, 15224, United States
University of Rochester Medical Center Strong Memorial
RECRUITING

Rochester, New York, 14642, United States
University of Texas Southwestern
RECRUITING

Dallas, Texas, 75390, United States
University of Texas Southwestern / Children's Health
RECRUITING

Dallas, Texas, 75207, United States
University of Washington Medical Center
RECRUITING

Seattle, Washington, 98195, United States
University of Wisconsin
RECRUITING

Madison, Wisconsin, 53792, United States
Vanderbilt University Medical Center
RECRUITING

Nashville, Tennessee, 37232, United States
Virginia Commonwealth University
RECRUITING

Richmond, Virginia, 23219, United States
Washington University School of Medicine
RECRUITING

St Louis, Missouri, 63110, United States
Wayne State University Harper University Hospital
RECRUITING

Detroit, Michigan, 48201, United States
West Virginia University - Morgantown
RECRUITING

Morgantown, West Virginia, 26507, United States

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