Heart data hunt: paving the way for new RASopathy drugs

NCT ID NCT07344480

First seen Jan 17, 2026 · Last updated May 25, 2026 · Updated 21 times

Summary

This study looks back at medical records of 100 children with a rare genetic condition called RASopathy that causes severe heart thickening and heart failure. The goal is to collect detailed health and genetic information to create a comparison group for future drug trials. No new treatments are tested here, but the data will help researchers design better studies for new targeted therapies.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HEART FAILURE are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • TUM Klinikum Deutsches Herzzentrum München

    RECRUITING

    München, 80636, Germany

Conditions

Explore the condition pages connected to this study.