Massive european registry launched to crack the code on rare head and neck cancers
NCT ID NCT05483374
First seen Apr 11, 2026 · Last updated Apr 29, 2026 · Updated 5 times
Summary
This study is building a large registry of up to 13,600 adults with rare head and neck cancers across Europe. Researchers will collect information from existing databases and doctors to track how these cancers behave, what treatments work best, and how patients fare over time. No new treatments are tested; the goal is to gather real-world data to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centro Nazionale di Adroterapia Oncologica
RECRUITINGPavia, Pavia, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fondazione IRCCS Istituto Nazionale dei Tumori
RECRUITINGMilan, Milan, 20133, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Clinica Humanitas
RECRUITINGRozzano, Milano, 20089, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Europeo di Oncologia
RECRUITINGMilan, Milano, 20141, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Istituto Nazionale Tumori Regina Elena
RECRUITINGRoma, Roma, 00144, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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IRCCS Ospedale Policlinico San Martino
RECRUITINGGenova, Genova, 16132, Italy
Contact Email: •••••@•••••
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IRCCS Ospedale San Raffaele
RECRUITINGMilan, Milano, 20132, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Masaryk Memorial Cancer Institute
NOT_YET_RECRUITINGBrno, Brno, 656 53, Czechia
Contact Email: •••••@•••••
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Nuovo Ospedale di Prato - S. Stefano
NOT_YET_RECRUITINGPrato, Prato, 59100, Italy
Contact Email: •••••@•••••
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University Hospital Essen
NOT_YET_RECRUITINGEssen, Hesse, 45147, Germany
Contact Email: •••••@•••••
Conditions
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