Researchers probe hidden toll on families of children with rare diseases
NCT ID NCT07348926
Summary
This study aims to understand how caring for a young child with a rare genetic disease affects a family's mental health and daily life. Researchers will survey 45 families in Turkey, measuring the child's ability to perform daily tasks and linking it to parents' stress, sleep, and overall well-being. The goal is to gather information that could help design better support programs for these families in the future.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Bahcesehir University
RECRUITINGIstanbul, 34053, Turkey (Türkiye)
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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