Real-world study aims to unlock secrets of rare childhood epilepsies
NCT ID NCT05126914
First seen Feb 24, 2026 · Last updated May 13, 2026 · Updated 8 times
Summary
This study follows 1,000 children and teens with rare epileptic syndromes like West and Dravet syndrome. Researchers want to see how different treatments affect seizure control and thinking skills over time. The goal is to gather real-life data to help doctors and families make better decisions.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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CHRU Lille
RECRUITINGLille, 59000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU Angers
RECRUITINGAngers, 49933, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU Strasbourg- Hôpital de Hautepierre
RECRUITINGStrasbourg, 67098, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Bordeaux
RECRUITINGBordeaux, 33076, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Brest - Hôpital de la Cavale Blanche
RECRUITINGBrest, 29200, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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CHU de Tours - hôpital Clocheville
RECRUITINGTours, 37044, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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HFME - HospiceS Civils De Lyon
RECRUITINGLyon, 69000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hopital Robert Debré - Neurologie
RECRUITINGParis, 75019, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hôpital La Timone - APHM
RECRUITINGMarseille, 13005, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hôpital Necker - APHP
RECRUITINGParis, 75015, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Hôpital Purpan - CHU de Toulouse
RECRUITINGToulouse, 31000, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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