New tool aims to capture daily life with rare inflammatory diseases
NCT ID NCT03569644
First seen Nov 01, 2025 · Last updated Jun 12, 2026 · Updated 30 times
Summary
This study involved 39 adults and children with six types of autoinflammatory diseases (such as FMF and Still's disease). Researchers conducted interviews to understand how these conditions affect daily life and well-being. The goal was to create a questionnaire that doctors can use to better assess quality of life in future patients.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CH André Mignot
Le Chesnay, France, 78150, France
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Dr Maryam PIRAM
Le Kremlin-Bicêtre, 94270, France
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TENON
Paris, Paris, 75020, France
Conditions
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