Untreated fabry patients share their stories in new national study
NCT ID NCT07560956
First seen May 08, 2026 · Last updated May 08, 2026
Summary
This study aims to learn how adults with Fabry disease who are not yet receiving treatment experience their quality of life and daily life. Researchers will interview 35 participants from Swedish hospitals to hear their personal stories about symptoms, emotional well-being, and healthcare support. The goal is to identify needs and improve care for people living with this rare condition.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Sahlgrenska University Hospital
Gothenburg, 413 45, Sweden
Conditions
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