Taiwan study tracks fabry disease patients on enzyme therapy
NCT ID NCT06052800
First seen May 30, 2026 · Last updated Jun 12, 2026 · Updated 3 times
Summary
This study looks at Fabry disease patients in Taiwan who have a specific genetic change called GLA IVS4. Researchers will collect information from medical records and patient reports to understand how the disease progresses and how well treatment with agalsidase beta works. About 78 adults will take part, and the study focuses on heart health and other key measures.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Investigational Site Number : 1580001
Taipei, 100, Taiwan
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Investigational Site Number : 1580002
Taipei, 112, Taiwan
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Investigational Site Number : 1580003
Taipei, 104, Taiwan
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Investigational Site Number : 1580004
Taichung, 407219, Taiwan
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Investigational Site Number : 1580005
Tainan, 704, Taiwan
Conditions
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Conditions inferred from the trial description
These were inferred from the trial's summary, not listed by the trial registrant.