New study aims to uncover what really matters for kids with intestinal failure
NCT ID NCT04629014
First seen Mar 27, 2026 · Last updated May 07, 2026 · Updated 5 times
Summary
This study looks at how children with intestinal failure feel about their quality of life, and what medical and social factors play a role. Researchers will follow 750 children and their families across the U.S. and Canada for up to 5 years. The goal is to better understand their experiences and find ways to improve care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Alberta Children's Hospital
RECRUITINGCalgary, Alberta, T3B 6A8, Canada
Contact Email: •••••@•••••
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BC Children's Hospital
RECRUITINGVancouver, British Columbia, V6H 3N1, Canada
Contact Email: •••••@•••••
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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C.S. Mott Children's Hospital
RECRUITINGAnn Arbor, Michigan, 48109, United States
Contact Email: •••••@•••••
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Children's of Alabama
NOT_YET_RECRUITINGBirmingham, Alabama, 35233, United States
Contact Email: •••••@•••••
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Connecticut Children's Medical Center
RECRUITINGHartford, Connecticut, 06106, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Dallas Children's Hospital
RECRUITINGDallas, Texas, 75390, United States
Contact Email: •••••@•••••
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Duke Children's Hospital
RECRUITINGDurham, North Carolina, 27710, United States
Contact Email: •••••@•••••
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Hospital for Sick Children
RECRUITINGToronto, Ontario, M5G 1X8, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
Contact Email: •••••@•••••
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
Contact Email: •••••@•••••
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St. Louis Children's Hospital
RECRUITINGSt Louis, Missouri, 63100, United States
Contact Email: •••••@•••••
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UT Health Houston
RECRUITINGHouston, Texas, 77030, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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