Major study launches to measure what matters most for kids with intestinal failure
NCT ID NCT04629014
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tracks the quality of life of 750 children with intestinal failure across North America. Researchers will use surveys to measure physical, emotional, and social well-being, and look at how medical and family factors affect these scores. The goal is to identify what helps these children thrive, not just survive.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could help doctors and families understand what improves quality of life for children with intestinal failure, leading to better support and care strategies.
- What could go wrong
- This is an observational study, not a treatment trial, so it won't directly change medical care. Results may vary across centers and may not apply to all patients.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Alberta Children's Hospital
RECRUITINGCalgary, Alberta, T3B 6A8, Canada
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BC Children's Hospital
RECRUITINGVancouver, British Columbia, V6H 3N1, Canada
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
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C.S. Mott Children's Hospital
RECRUITINGAnn Arbor, Michigan, 48109, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's of Alabama
NOT_YET_RECRUITINGBirmingham, Alabama, 35233, United States
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Connecticut Children's Medical Center
RECRUITINGHartford, Connecticut, 06106, United States
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Dallas Children's Hospital
RECRUITINGDallas, Texas, 75390, United States
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Duke Children's Hospital
RECRUITINGDurham, North Carolina, 27710, United States
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Hospital for Sick Children
RECRUITINGToronto, Ontario, M5G 1X8, Canada
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Lurie Children's Hospital
RECRUITINGChicago, Illinois, 60611, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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St. Louis Children's Hospital
RECRUITINGSt Louis, Missouri, 63100, United States
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UT Health Houston
RECRUITINGHouston, Texas, 77030, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.