Living with fish scale disease: patients share their struggles
NCT ID NCT05610306
First seen Nov 01, 2025 · Last updated Apr 25, 2026 · Updated 21 times
Summary
This study interviewed 20 adults aged 30 and older with congenital ichthyosis to understand how the condition impacts their quality of life. Participants answered questions about pain, social life, work, sports, and financial burden. The goal is to gather insights, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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Maastricht University Medical Centre +
Maastricht, 6229HX, Netherlands
Conditions
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