Living with ichthyosis: patients share their stories in new study
NCT ID NCT05610306
First seen Nov 01, 2025 · Last updated Jun 16, 2026 · Updated 30 times
Summary
This study interviewed 20 adults aged 30 and older with congenital ichthyosis to understand how the condition impacts their daily life, including pain, social activities, work, and finances. No treatments were tested; the goal was simply to learn from patients' experiences.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for CONGENITAL ICHTHYOSIS are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Maastricht University Medical Centre +
Maastricht, 6229HX, Netherlands
Conditions
Explore the condition pages connected to this study.