Living with ichthyosis: what 20 patients reveal about daily struggles
NCT ID NCT05610306
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study interviewed 20 adults aged 30 and older with congenital ichthyosis, a rare genetic skin condition. Researchers asked about pain, social life, work, and finances to learn how the disease affects overall well-being. The goal was to gather insights, not to test a treatment.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Maastricht University Medical Centre +
Maastricht, 6229HX, Netherlands
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Other studies related to the condition(s) this trial covers.