Rare birth defect survivors: what is life really like?

NCT ID NCT07432672

First seen Jun 27, 2026 ยท Last updated Jun 27, 2026

Summary

This study looked at the quality of daily life in children aged 5 to 18 who were born with a congenital diaphragmatic hernia (a hole in the diaphragm). Researchers asked the children, their parents, and siblings to fill out a questionnaire about physical and emotional well-being, friendships, and school. The goal was to understand how these children feel day-to-day, so doctors can better support them long-term. No new treatment was tested.

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Conditions

The condition(s) this trial relates to.

congenital diaphragmatic hernia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Medical University of Vienna

    Vienna, State of Vienna, 1090, Austria