Rare birth defect survivors: what is life really like?

This study looked at the quality of daily life in children aged 5 to 18 who were born with a congenital diaphragmatic hernia (a hole in the diaphragm). Researchers asked the children, their parents, and siblings to fill out a questionnaire about physical and emotional well-being, friendships, and school. The goal was to understand how these children feel day-to-day, so doctors can better support them long-term. No new treatment was tested.