Scientists track rare eye disease to pave way for future treatments
NCT ID NCT05573984
First seen Apr 17, 2026 · Last updated May 24, 2026 · Updated 4 times
Summary
This study follows 50 people with a rare inherited eye condition called PRPF31-related retinal dystrophy (RP11) to understand how their vision and quality of life change over time. Participants undergo various eye tests and questionnaires, but no experimental treatment is given. The goal is to gather natural history data that can help design future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Centre For Eye Research Australia (CERA) - Retinal Gene Therapy Unit
East Melbourne, Australia
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Lions Eye Institute
Nedlands, Western Australia, 6009, Australia
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Oregon Health and Science University - Casey Eye Institute
Portland, Oregon, 97239, United States
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Retina Foundation of the Southwest
Dallas, Texas, 75321, United States
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University of California San Francisco
San Francisco, California, 94143, United States
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University of Florida Health
Jacksonville, Florida, 32209, United States
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University of Michigan Kellogg Eye Center
Ann Arbor, Michigan, 48105, United States
Conditions
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