Scientists track vision loss in rare genetic eye disease to pave way for future treatments
NCT ID NCT05573984
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 50 people with a rare inherited eye condition called PRPF31-related retinal dystrophy (RP11) to see how their vision changes over time. Researchers will measure things like visual acuity, retinal thickness, and quality of life using eye exams and questionnaires. The goal is to better understand the disease's natural course and identify the best ways to measure improvement in future treatment trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could identify key measures of disease progression, helping design future clinical trials for treatments targeting this form of retinal dystrophy.
What could go wrong
This is an observational study, not testing any treatment. It may not lead directly to a therapy, and results may not apply to all forms of retinitis pigmentosa.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Centre For Eye Research Australia (CERA) - Retinal Gene Therapy Unit
East Melbourne, Australia
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Lions Eye Institute
Nedlands, Western Australia, 6009, Australia
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Oregon Health and Science University - Casey Eye Institute
Portland, Oregon, 97239, United States
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Retina Foundation of the Southwest
Dallas, Texas, 75321, United States
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University of California San Francisco
San Francisco, California, 94143, United States
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University of Florida Health
Jacksonville, Florida, 32209, United States
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University of Michigan Kellogg Eye Center
Ann Arbor, Michigan, 48105, United States