Can a Child's own words improve cancer care?

NCT ID NCT07738601

Not yet recruiting Knowledge-focused Sponsor: Assistance Publique Hopitaux De Marseille Source: ClinicalTrials.gov ↗

First seen Jul 31, 2026 · Last updated Jul 31, 2026

Summary

This study asks whether a simple questionnaire, called SSPedi, can capture the symptoms that children with brain or spinal cord tumors experience while on new cancer therapies. Children aged 2 to 18 who are already part of a larger French study (SACHA) will use an app to report their symptoms. Researchers will compare these reports with side effects noted by doctors to see if the child's perspective adds valuable information for better care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: SSPedi questionnaire (a self-report tool for children to record their symptoms)
What this could lead to: If successful, this could improve how symptoms are captured in pediatric cancer trials, leading to better supportive care and more patient-centered outcomes.
What could go wrong: The study is observational and small (72 participants), so findings may not apply broadly. Also, children's self-reports may not always match clinician assessments.

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Conditions

The condition(s) this trial relates to.

central nervous system cancer childhood neoplasm leukemia neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CNS TUMOR, CHILDHOOD

Contacts and locations

Locations

Assistance Publique - Hôpitaux de Marseille

Marseille, France

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