Pompe disease drug safety checked in pregnant women and infants

NCT ID NCT05734521

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study gathers safety information from about 100 women with Pompe disease who received Nexviazyme while pregnant or breastfeeding, and from their babies. Researchers will track pregnancy complications, birth outcomes, and infant growth and development through the first year of life. The goal is to better understand any risks of the drug during pregnancy and breastfeeding. No new treatment is given; this is an observational safety registry.

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Conditions

The condition(s) this trial relates to.

glycogen storage disease II Glycogen Storage Disease Type II

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Investigational site worldwide

    RECRUITING

    Bridgewater, New Jersey, 08807, United States

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