Massive PKD data collection aims to unlock secrets of kidney disease

NCT ID NCT00792155

Recruiting now Knowledge-focused Sponsor: The Rogosin Institute Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is building a large database of health information from people with autosomal dominant polycystic kidney disease (PKD), the most common inherited kidney disease. Researchers will collect data from 1,000 adults over time to better understand complications like high blood pressure, heart attack, and stroke. The goal is to use this information to improve future treatments for PKD.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this data repository could help researchers better understand PKD and develop improved treatment strategies.
What could go wrong: This is an observational study that does not test any treatment, so it will not directly benefit participants. Results depend on the quality and completeness of the data collected.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

autosomal dominant polycystic kidney disease polycystic kidney disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

POLYCYSTIC KIDNEY DISEASE

Contacts and locations

Locations

The Rogosin Institute
RECRUITING

New York, New York, 10021, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.