Massive PKD data hunt aims to unlock kidney disease secrets
NCT ID NCT00792155
First seen Nov 12, 2025 · Last updated May 15, 2026 · Updated 23 times
Summary
This study is creating a large database of health information from 1,000 adults with autosomal dominant polycystic kidney disease (ADPKD). The goal is to track how the disease affects people over time, including complications like high blood pressure and kidney failure. No new treatments are being tested—instead, researchers hope this data will lead to better care in the future.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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The Rogosin Institute
RECRUITINGNew York, New York, 10021, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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