New tool aims to give kids with transplant side effects a voice
NCT ID NCT04044365
First seen Dec 29, 2025 · Last updated Jun 16, 2026 · Updated 29 times
Summary
This study is developing a questionnaire specifically for children and teens (ages 5-17) who have chronic graft-versus-host disease (cGVHD) after a stem cell transplant. The goal is to create a tool that accurately captures how bothersome their symptoms are, since current scales are designed for adults. About 139 children and their parents will help test and refine the questionnaire through interviews and surveys.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Children s National Medical Center (CNMC)
Washington D.C., District of Columbia, 20010, United States
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Children's & Women's Health Centre of British Columbia (CWHC of BC)
Vancouver BC, Canada
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Children's Healthcare of Atlanta - Egleston Hospital
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado (CHCO)
Aurora, Colorado, 80045, United States
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Children's Wisconsin
Milwaukee, Wisconsin, 53226, United States
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Fred Hutchinson Cancer Center (FHCC)
Seattle, Washington, 98109, United States
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Hospital for Sick Children (SickKids)
Toronto, Canada
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Johns Hopkins Hospital (JHH)
Baltimore, Maryland, 21287, United States
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Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611, United States
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National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
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Phoenix Children's Hospital
Phoenix, Arizona, 85016, United States
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St. Jude Children s Research Hospital
Memphis, Tennessee, 38105, United States
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Texas Children's Hospital (TCH)-Baylor
Houston, Texas, 77030, United States
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The University of Texas MD Anderson Cancer Institute
Houston, Texas, 77030, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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University of Pittsburgh - Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224, United States
Conditions
Explore the condition pages connected to this study.