New registry tracks kids with rare liver conditions to improve care
NCT ID NCT07411716
First seen Feb 23, 2026 · Last updated May 15, 2026 · Updated 13 times
Summary
This study builds a national registry for children under 18 with Alagille syndrome or genetic intrahepatic cholestasis. Researchers will collect health data over many years to understand how these rare liver diseases progress and how treatments work in real life. The goal is to improve care and outcomes for affected children across Canada.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Alberta Children's Hospital
NOT_YET_RECRUITINGCalgary, Alberta, Canada
Contact Email: •••••@•••••
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BC Children's Hospital
NOT_YET_RECRUITINGVancouver, British Columbia, Canada
Contact Email: •••••@•••••
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CHU Sainte-Justine
NOT_YET_RECRUITINGMontreal, Quebec, Canada
Contact Email: •••••@•••••
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CHU de Quebec - Universite Laval (Centre Mere-Enfant Soleil)
NOT_YET_RECRUITINGQubec City, Quebec, Canada
Contact Email: •••••@•••••
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Children's Hospital IWK Health Centre
NOT_YET_RECRUITINGHalifax, Nova Scotia, Canada
Contact Email: •••••@•••••
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Children's Hospital LHSC
NOT_YET_RECRUITINGLondon, Ontario, Canada
Contact Email: •••••@•••••
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Children's Hospital of Eastern Ontario
RECRUITINGOttawa, Ontario, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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HSC Winnipeg Children's Hospital
NOT_YET_RECRUITINGWinnipeg, Manitoba, Canada
Contact Email: •••••@•••••
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Janeway Children's Health and Rehabilitation Centre
NOT_YET_RECRUITINGSt. John's, Newfoundland and Labrador, Canada
Contact Email: •••••@•••••
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Jim Pattison Children's Hospital
NOT_YET_RECRUITINGSaskatoon, Saskatchewan, Canada
Contact Email: •••••@•••••
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McMaster Children's Hospital
NOT_YET_RECRUITINGHamilton, Ontario, Canada
Contact Email: •••••@•••••
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Montreal Children's Hospital
NOT_YET_RECRUITINGMontreal, Quebec, Canada
Contact Email: •••••@•••••
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Stollery Children's Hospital
NOT_YET_RECRUITINGEdmonton, Alberta, Canada
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.