Global effort to unlock secrets of rare lung disease

NCT ID NCT03517865

First seen Jan 04, 2026 · Last updated May 13, 2026 · Updated 13 times

Summary

This study gathers medical information from 3400 people with primary ciliary dyskinesia (PCD), a rare disease that affects the lungs and other organs. Researchers will analyze past and new data on symptoms, lung function, and test results to better understand the disease and how it progresses. The goal is to improve diagnosis and treatment for people with PCD worldwide.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • University of Bern

    Bern, 3012, Switzerland

Conditions

Explore the condition pages connected to this study.