Scientists map breathing crises in rare lung disease
NCT ID NCT05161858
Summary
This study aimed to gather detailed information about respiratory flare-ups in people with primary ciliary dyskinesia (PCD), a rare genetic condition affecting the lungs. Researchers followed 105 children and adults with PCD for about a year, measuring their lung function and symptoms during both healthy periods and illness episodes. The data collected will help design future clinical trials testing treatments to prevent or better manage these respiratory flare-ups.
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Contacts and locations
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Locations
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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McGill University
Montreal, Quebec, H4A 3J1, Canada
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Stanford University
Palo Alto, California, 94304, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 0A4, Canada
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University of North Carolina at Chapel Hill
Chapel Hill, North Carolina, 27599, United States
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Washington University in St. Louis
St Louis, Missouri, 63130, United States
Conditions
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