Global effort launches to map hidden symptoms of rare lung disease
NCT ID NCT04611516
Summary
This study aims to better understand the ear, nose, and throat (ENT) problems experienced by people with Primary Ciliary Dyskinesia (PCD), a rare genetic condition that affects the lungs and sinuses. Researchers will observe 1000 patients at clinics worldwide during their regular check-ups, tracking symptoms like sinus infections and hearing issues over two years. The goal is to learn how these ENT problems relate to lung disease and what factors influence their progression, which could help improve future care.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Bern
RECRUITINGBern, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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