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Can we help parents make better choices for children with cancer?

NCT ID NCT02282735

Knowledge-focused Sponsor: Dana-Farber Cancer Institute Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing This study
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 20, 2026 · Last updated Aug 21, 2026 · Updated 1 time

Summary

This study looks at how parents make treatment decisions when their child has relapsed neuroblastoma, a type of cancer. Researchers want to understand if parents' choices match their true preferences, and whether they feel regret or burden over time. By following 96 parents, the study aims to improve support so decisions reflect what families really want, whether that means aggressive treatment or comfort care.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this research could help doctors better support parents facing tough choices, potentially reducing regret and suffering for families.
What could go wrong
This is an observational study, so it won't test a treatment. Findings may not apply to all families or cancers, and results depend on honest reporting.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

96 people

The number who actually took part.

Started

May 2013

Expected to finish

Jun 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Parents of children with relapsed or refractory neuroblastoma.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Parent of a child with relapsed or refractory high risk neuroblastoma, as defined by the International Neuroblastoma Risk Group, without respect to timing of first determination of relapse or refractory disease; * Parent aged 18 years or older, of a child aged \<=18 years; * English- or Spanish-speaking. Exclusion Criteria: * Delirium/dementia as judged by the treating physician

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Conditions

The condition(s) this trial relates to.

Death neoplasm neuroblastoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Relapsed neuroblastoma

Contacts and locations

Locations

  • Children's Hospital of Los Angeles

    Los Angeles, California, 90027, United States

  • Columbia University Medical Center

    New York, New York, 10032, United States

  • Cook's Children's Healthcare System

    Fort Worth, Texas, 76104, United States

  • Dana-Farber Cancer Institute

    Boston, Massachusetts, 02215, United States

  • Seattle Children's Hospital

    Seattle, Washington, 98145, United States

  • St. Jude Children's Research Hospital

    Memphis, Tennessee, 38105, United States

  • Stanford/Packard's Children's Hospital

    Palo Alto, California, 94304, United States

  • The Children's Hospital of Philadelphia

    Philadelphia, Pennsylvania, 19104, United States

  • The University of Chicago Medical Center

    Chicago, Illinois, 60637, United States

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