New hope for easing the silent pain of children with severe disabilities
NCT ID NCT06075797
Summary
This small pilot study tested whether a new support system could help manage recurrent pain in children with severe neurological disabilities, who often cannot communicate their discomfort. The system involved weekly surveys for parents, feedback reports for the care team, and support from a specialized palliative care team. Researchers compared this approach to usual care to see if a larger, definitive trial would be feasible and if the system showed promise for easing pain and helping families.
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Contacts and locations
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Locations
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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Dana-Farber Cancer Institute
Boston, Massachusetts, 02115, United States
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Deakin University
Burwood, Victoria, 3125, Australia
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University of Alabama, Birmingham
Birmingham, Alabama, 35294, United States
Conditions
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