New study hopes to unlock secrets of rare brain condition in children
NCT ID NCT07421219
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This observational study will follow 50 children aged 5 to 8 with non-progressive congenital ataxia, a rare condition that affects movement and coordination. Researchers will use detailed exams, brain scans, and genetic testing to better understand the disorder and its impact on quality of life. The goal is to improve diagnosis and pave the way for future targeted treatments.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could lead to better diagnostic tools and targeted therapies for children with non-progressive congenital ataxia.
What could go wrong
This is an observational study, not a treatment trial, so no direct benefit to participants. It is small (50 children) and early-stage, so findings may not apply broadly.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Aarhus University Hospital
Aarhus, Denmark
Contact Email: •••••@•••••
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IASO Children's Hospital
Athens, Greece
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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KU Leuven
Leuven, Belgium
Contact Email: •••••@•••••
Contact Email: •••••@•••••
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Queen Silvia Children's Hospital at Sahlgrenska University Hospital
Gothenburg, 416 50, Sweden
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Toulouse University Hospital
Toulouse, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Tübingen
Tübingen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Vestfold Hospital Trust
Tønsberg, Norway
Contact Email: •••••@•••••
Contact Email: •••••@•••••