New study hopes to spot cancer early in NF1 patients

NCT ID NCT06222203

Recruiting now Knowledge-focused Sponsor: National Cancer Institute (NCI) Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is for people aged 3 and older with neurofibromatosis type 1 (NF1), a genetic condition that often causes noncancerous nerve tumors. About half of people with NF1 get these tumors, and sometimes they turn cancerous. Researchers want to test a new method to predict which tumors might become cancer. Participants will have blood tests, scans, and physical exams, and will be followed for up to 10 years to see how well the prediction method works.

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Conditions

The condition(s) this trial relates to.

nerve sheath neoplasm neurofibroma neurofibromatosis type 1 neurofibrosarcoma plexiform neurofibroma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

NERVE SHEATH NEOPLASMS NEUROFIBROMATOSIS 1

Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Contact Phone: •••-•••-••••