New study aims to spot cancer before it starts in NF1 patients

NCT ID NCT06222203

First seen Nov 01, 2025 · Last updated May 08, 2026 · Updated 21 times

Summary

This study looks at people with neurofibromatosis type 1 (NF1), a genetic condition that often causes noncancerous nerve tumors. About half of these people may develop tumors that can become cancerous, but doctors don't know which ones will change. The study will follow 225 participants aged 3 and older for up to 10 years, using scans and tests to see if a new method can better predict cancer risk.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-••••

Conditions

Explore the condition pages connected to this study.