Patients help design tools to measure how NF1 tumors affect appearance
NCT ID NCT06880991
Summary
This study aims to create better questionnaires to understand how visible tumors affect the appearance and daily life of people with Neurofibromatosis Type 1 (NF1). Researchers are asking 110 patients and caregivers to review and discuss draft questionnaires in focus groups. The goal is to develop tools that can be used in future treatment trials to measure changes in appearance concerns.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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