Egypt's first major NF1 registry launches to map rare genetic disorder
NCT ID NCT07221331
Summary
This study aims to understand how Neurofibromatosis Type 1 (NF1) affects people in Egypt by collecting health information from 200 patients diagnosed between 2010 and 2023. Researchers will track how the disease progresses over time, what treatments patients receive, and how common different complications are. The goal is to build a clearer picture of NF1's impact to help improve future care.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEUROFIBROMATOSIS TYPE 1 are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Research Site
RECRUITINGAl Mansurah, Egypt
-
Research Site
RECRUITINGAlexandria, Egypt
-
Research Site
RECRUITINGAswān, Egypt
-
Research Site
NOT_YET_RECRUITINGAsyut, Egypt
-
Research Site
RECRUITINGCairo, Egypt
-
Research Site
NOT_YET_RECRUITINGCairo, Egypt
-
Research Site
NOT_YET_RECRUITINGSohag, Egypt
-
Research Site
RECRUITINGTanta, Egypt
-
Research Site
NOT_YET_RECRUITINGZagazig, Egypt
Conditions
Explore the condition pages connected to this study.