Egypt launches first Large-Scale NF1 registry to uncover disease patterns
NCT ID NCT07221331
First seen Nov 01, 2025 · Last updated May 29, 2026 · Updated 23 times
Summary
This study is a disease registry that will collect information from 200 people in Egypt who have neurofibromatosis type 1 (NF1), a genetic condition that causes tumors to grow on nerves. The goal is to learn how NF1 progresses over time, what treatments patients receive, and how the disease affects their lives. No new treatments are being tested; instead, researchers will review medical records to better understand NF1 in the Egyptian population.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGAl Mansurah, Egypt
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Research Site
RECRUITINGAlexandria, Egypt
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Research Site
RECRUITINGAswān, Egypt
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Research Site
NOT_YET_RECRUITINGAsyut, Egypt
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Research Site
RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGSohag, Egypt
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Research Site
RECRUITINGTanta, Egypt
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Research Site
NOT_YET_RECRUITINGZagazig, Egypt
Conditions
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