Kids get their say: new survey aims to capture true toll of transplant side effect
NCT ID NCT04044365
Summary
This study aims to create and test a new questionnaire specifically for children and teens living with chronic graft-versus-host disease (cGVHD), a serious and often painful side effect of stem cell transplants. Researchers will work with 420 children (ages 5-17) and their parents to design questions that kids can easily understand, asking how much their symptoms bother them in daily life. The goal is to improve how doctors measure and track the impact of this condition on young patients' well-being.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children s National Medical Center (CNMC)
ACTIVE_NOT_RECRUITINGWashington D.C., District of Columbia, 20010, United States
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Children's & Women's Health Centre of British Columbia (CWHC of BC)
ACTIVE_NOT_RECRUITINGVancouver BC, Canada
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Children's Healthcare of Atlanta - Egleston Hospital
ACTIVE_NOT_RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado (CHCO)
ACTIVE_NOT_RECRUITINGAurora, Colorado, 80045, United States
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Children's Wisconsin
NOT_YET_RECRUITINGMilwaukee, Wisconsin, 53226, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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City of Hope
NOT_YET_RECRUITINGDuarte, California, 91010, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Fred Hutchinson Cancer Center (FHCC)
ACTIVE_NOT_RECRUITINGSeattle, Washington, 98109, United States
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Hospital for Sick Children (SickKids)
ACTIVE_NOT_RECRUITINGToronto, Canada
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Johns Hopkins Hospital (JHH)
ACTIVE_NOT_RECRUITINGBaltimore, Maryland, 21287, United States
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Lurie Children's Hospital of Chicago
ACTIVE_NOT_RECRUITINGChicago, Illinois, 60611, United States
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National Institutes of Health Clinical Center
ACTIVE_NOT_RECRUITINGBethesda, Maryland, 20892, United States
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Phoenix Children's Hospital
RECRUITINGPhoenix, Arizona, 85016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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St. Jude Children s Research Hospital
ACTIVE_NOT_RECRUITINGMemphis, Tennessee, 38105, United States
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Texas Children's Hospital (TCH)-Baylor
ACTIVE_NOT_RECRUITINGHouston, Texas, 77030, United States
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The University of Texas MD Anderson Cancer Institute
ACTIVE_NOT_RECRUITINGHouston, Texas, 77030, United States
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University of Minnesota
ACTIVE_NOT_RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of Pittsburgh - Children's Hospital of Pittsburgh
ACTIVE_NOT_RECRUITINGPittsburgh, Pennsylvania, 15224, United States
Conditions
Explore the condition pages connected to this study.