500 NF1 patients join study to track skin tumors over 5 years
NCT ID NCT05581511
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows 500 people with neurofibromatosis type 1 (NF1) to see how their skin tumors (called cutaneous neurofibromas) grow and change over time. Researchers use 3D whole-body photography to track tumor number and size each year. The goal is to better understand these tumors and improve future care for people with NF1.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could help doctors better predict how skin tumors grow in NF1 and guide future treatments.
- What could go wrong
- This is an observational study, not testing a treatment. It may not lead to direct benefits for participants.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Johns Hopkins University
Baltimore, Maryland, 21287, United States
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Other studies related to the condition(s) this trial covers.
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