New study aims to uncover why some myotonic dystrophy patients develop low breathing
NCT ID NCT03764150
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study followed 113 adults with myotonic dystrophy (Steinert's disease) for 5 years to find out what factors lead to low breathing (hypoventilation). Researchers measured lung function, sleepiness, fatigue, and thinking skills. The goal is to better understand which patients are at risk and how breathing problems progress over time.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could help doctors predict and manage breathing problems in myotonic dystrophy patients earlier.
What could go wrong
This is an observational study, not a treatment trial. It may not lead to direct changes in care, and results may not apply to all patients.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Ap-Hp Hu Paris Site Raymond Poincare
Garches, France
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Ap-Hp Hu Pitie Salpetriere
Paris, France
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Centre Hospitalier Regional D' Angers
Angers, France
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Chu Montpellier
Montpellier, France
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Chu de Nantes :Site Hôtel-Dieu- Hme - Nantes 1
Nantes, France
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Hôpital Calmette, CHRU
Lille, France