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Registry aims to map Real-World multiple myeloma care across italy

NCT ID NCT05001087

Knowledge-focused Sponsor: Fondazione EMN Italy Onlus Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Sep 09, 2026 · Last updated Sep 10, 2026 · Updated 1 time

Summary

This observational study builds a national registry of people with multiple myeloma in Italy. Researchers collect information from routine care at different hematology centers to describe how patients are diagnosed and treated. The registry tracks overall survival, time to next treatment, quality of life, and costs patients face. It does not test a new drug or assign any treatment.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If the registry succeeds, it could give doctors a detailed picture of how multiple myeloma care varies across Italy and where treatment and outcomes might improve.
What could go wrong
This is an observational registry, so it cannot prove that any treatment works better than another. The findings will reflect care in Italian hematology centers and may not apply elsewhere.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,900 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2021

Expected to finish

Mar 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The registry will include approximately 30 Italian haematology facilities. On the basis of the centres' enrolment capacity and incidence and epidemiology data it is reasonable to presume that at least 1900 patients will be enrolled in 3 years. Only patients who meet the eligibility criteria will be included in the registry.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patients of both sexes * Age ≥ 18 years * Diagnosis of active/symptomatic multiple myeloma (according to CRAB and biological parameters) no earlier than 1st January 2019 * Able and willing to sign an informed consent form Exclusion Criteria: * None considered

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Conditions

The condition(s) this trial relates to.

plasma cell myeloma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Multiple myeloma

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The study's own enquiry address

    This study publishes an address for enquiries. See it below .

  2. The places running it

    26 sites. The list below names each one and where it is.

  3. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  4. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • A.O Ordine Mauriziano

    RECRUITING

    Torino, Italy

  • A.O. Santa Maria

    RECRUITING

    Terni, Italy

  • A.O. Spedali Civili di Brescia

    RECRUITING

    Brescia, Italy

  • A.O.U Federico II

    NOT_YET_RECRUITING

    Naples, Italy

  • A.O.U Policlinico S. Martino

    RECRUITING

    Genova, Italy

  • A.O.U di Careggi

    RECRUITING

    Florence, Firenze, 50134, Italy

  • A.O.U di Parma

    RECRUITING

    Parma, Italy

  • AOU Città della Salute e della Scienza di Torino

    RECRUITING

    Torino, Italy

  • AOU Ospedali Riuniti Umberto I

    RECRUITING

    Ancona, Italy

  • AOU Policlinico Vittorio Emanuele

    RECRUITING

    Catania, Italy

  • ASST Santi Paolo e Carlo

    RECRUITING

    Milan, Italy

  • Fondazione IRCCS Ca' Grande Ospedale Maggiore Policlinico

    RECRUITING

    Milan, Italy

  • IRCCS Ospedale Casa Sollievo della Sofferenza

    RECRUITING

    San Giovanni Rotondo, Italy

  • Istituto Nazionale Tumori

    RECRUITING

    Milan, Italy

  • Ospedale "Infermi"

    TERMINATED

    Rimini, Italy

  • Ospedale Maggiore

    RECRUITING

    Novara, Italy

  • Ospedale Niguarda Cà Grande

    RECRUITING

    Milan, Italy

  • Ospedale S. Eugenio

    RECRUITING

    Roma, Italy

  • Ospedale San Gerardo di Monza

    RECRUITING

    Monza, Italy

  • Ospedale di Circolo

    RECRUITING

    Varese, Italy

  • Policlinico S. Orsola

    RECRUITING

    Bologna, Italy

  • Policlinico San Matteo Fondazione IRCCS

    RECRUITING

    Pavia, Italy

  • Policlinico Umberto I - Università La Sapienza

    RECRUITING

    Roma, Italy

  • Policlinico Universitario Campus Biomedico

    RECRUITING

    Roma, Italy

  • Policlinico Universitario di Udine

    RECRUITING

    Udine, Italy

  • Policlinico di Bari

    RECRUITING

    Bari, Italy

  • Policlinico di Bari - Ematologia con Trapianto

    NOT_YET_RECRUITING

    Bari, Italy

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