MRI scans could revolutionize how we measure muscular dystrophy
NCT ID NCT01484678
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This study uses MRI scans to track muscle damage and fat buildup in boys and men with Duchenne or Becker muscular dystrophy over 5-10 years. Researchers will compare these images with how well participants can walk and perform daily activities. The goal is to find better ways to measure disease progression in future clinical trials.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this could provide better ways to measure disease progression in muscular dystrophy, helping future trials test treatments more effectively.
- What could go wrong
- This is an observational study, not testing a treatment. It may not lead directly to new therapies, and results depend on long-term participation.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Children's Hospital of Philadelphia
ACTIVE_NOT_RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Oregon Health and Science University
RECRUITINGPortland, Oregon, 97239, United States
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University of Florida
RECRUITINGGainesville, Florida, 32610, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
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- Can brain scans unlock hidden effects of becker muscular dystrophy?
- Can a targeted infusion slow muscle decline in duchenne? a new trial aims to find out.
- Can a massive patient database unlock new treatments for muscular dystrophy?
- Umbilical cord stem cells aim to slow muscle loss in duchenne boys
- Experimental drug aims to preserve arm and lung function in boys with advanced duchenne