Global MPNST registry aims to unlock secrets of rare nerve cancer

NCT ID NCT03141021

Recruiting now Knowledge-focused Sponsor: Washington University School of Medicine Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is building a worldwide database of people with malignant peripheral nerve sheath tumors (MPNST), a rare cancer often linked to the genetic condition neurofibromatosis type 1. Researchers will collect medical records, tumor samples, and genetic data to find patterns that could improve diagnosis and treatment. The goal is to better understand the disease, not to test a new therapy.

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Conditions

The condition(s) this trial relates to.

malignant peripheral nerve sheath tumor neurofibrosarcoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

MALIGNANT PERIPHERAL NERVE SHEATH TUMORS

Contacts and locations

Locations

Dana Farber Cancer Institute
WITHDRAWN

Boston, Massachusetts, 02215, United States
Global Gene Corporation
COMPLETED

Mumbai, India
Johns Hopkins
RECRUITING

Baltimore, Maryland, 21205, United States
Lifespan
COMPLETED

Providence, Rhode Island, 02903, United States
Memorial Sloan Kettering Cancer Center
NOT_YET_RECRUITING

New York, New York, 10065, United States
Moffitt Cancer Center
COMPLETED

Tampa, Florida, 33612, United States
Mount Sinai
RECRUITING

Toronto, Ontario, M5T 3L9, Canada
Nagoya University Hospital
RECRUITING

Nagoya, Showa Ward, Japan
National Institutes of Health (NIH)
NOT_YET_RECRUITING

Bethesda, Maryland, 20892, United States
Royal National Orthopedic Hospital
TERMINATED

London, United Kingdom
University of Minnesota
WITHDRAWN

Minneapolis, Minnesota, 55455, United States
University of Utah
COMPLETED

Salt Lake City, Utah, 84112, United States
Washington University School of Medicine
RECRUITING

St Louis, Missouri, 63110, United States

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