Global MPNST registry aims to unlock secrets of rare nerve cancer
NCT ID NCT03141021
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is building a worldwide database of people with malignant peripheral nerve sheath tumors (MPNST), a rare cancer often linked to the genetic condition neurofibromatosis type 1. Researchers will collect medical records, tumor samples, and genetic data to find patterns that could improve diagnosis and treatment. The goal is to better understand the disease, not to test a new therapy.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Dana Farber Cancer Institute
WITHDRAWNBoston, Massachusetts, 02215, United States
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Global Gene Corporation
COMPLETEDMumbai, India
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Johns Hopkins
RECRUITINGBaltimore, Maryland, 21205, United States
Contact Phone: •••-•••-••••
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Lifespan
COMPLETEDProvidence, Rhode Island, 02903, United States
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Memorial Sloan Kettering Cancer Center
NOT_YET_RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
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Moffitt Cancer Center
COMPLETEDTampa, Florida, 33612, United States
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Mount Sinai
RECRUITINGToronto, Ontario, M5T 3L9, Canada
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Nagoya University Hospital
RECRUITINGNagoya, Showa Ward, Japan
Contact Phone: •••-•••-•••• Email: •••••@•••••
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National Institutes of Health (NIH)
NOT_YET_RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Royal National Orthopedic Hospital
TERMINATEDLondon, United Kingdom
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University of Minnesota
WITHDRAWNMinneapolis, Minnesota, 55455, United States
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University of Utah
COMPLETEDSalt Lake City, Utah, 84112, United States
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Washington University School of Medicine
RECRUITINGSt Louis, Missouri, 63110, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Contact
Contact
Contact
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