New registry aims to unlock secrets of rare childhood blood cancers

NCT ID NCT07410247

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study creates a nationwide registry and biobank for children diagnosed with myeloproliferative neoplasms (MPNs)—rare blood cancers that cause overproduction of blood cells. By collecting medical data and blood samples from up to 500 children across Germany, researchers hope to understand how these diseases differ in children versus adults. The goal is to improve diagnosis, identify those at risk for complications, and develop better treatments tailored to young patients.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could provide crucial insights into how MPNs affect children, leading to better diagnosis and tailored treatments for this rare group.

What could go wrong

This is an observational registry, not a treatment trial. It collects data but does not test any therapy, so direct patient benefits may take years to emerge.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

acquired polycythemia vera cellular phase chronic idiopathic myelofibrosis essential thrombocythemia myeloproliferative neoplasm primary myelofibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Department of Pediatrics and Adolescent Medicine, University Hospital Erlangen, Friedrich-Alexander-Universität (FAU) Erlangen-Nürnberg, Erlangen, Germany

    RECRUITING

    Erlangen, Bavaria, D-91054, Germany

    Contact Phone: •••-•••-•••• Email: •••••@•••••