Marfan syndrome in kids: new study looks beyond the physical symptoms
NCT ID NCT05748314
First seen Jun 26, 2026 · Last updated Jul 02, 2026 · Updated 1 time
Summary
This study observes 80 children with Marfan syndrome to understand how the condition impacts their quality of life, self-image, and ability to manage their health. Participants fill out questionnaires about their well-being and medication habits. The goal is to identify who might benefit from psychological support, not to test a new treatment.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could help doctors identify which children with Marfan syndrome need psychological support, improving their overall care.
- What could go wrong
- This is an observational study, not a treatment trial. It will not test any new therapy or cure, and results may not apply to all patients.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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IRCCS Policlinico San Donato
San Donato Milanese, Lombardy, 20097, Italy
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