MLD drug safety tracked for years in extension study
NCT ID NCT01887938
First seen Jan 10, 2026 · Last updated May 17, 2026 · Updated 16 times
Summary
This study checked the long-term safety of a drug called HGT-1110 in 24 people with metachromatic leukodystrophy (MLD), a rare nerve disease. All participants had already received the drug in an earlier study. Researchers monitored side effects and immune responses over many years to see if the treatment remained safe.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CHR Orleans - Hopital La Source
Orléans, 45067, France
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CHU de Nantes
Nantes, 44093, France
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Center for Pediatric Clinical Studies (CPCS)
Tübingen, Baden-Wurttemberg, 72076, Germany
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Detska Interni Klinika, Lf Mu A Fn Brno
Brno, 61300, Czechia
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Hopital Femme Mere Enfant
Bron, 69 677, France
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Hopital Gui de Chauliac - CHRU de Montpellier
Montpellier, 34000, France
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Hospital de Clinicas de Porto Alegre
Porto Alegre, 90035-003, Brazil
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Hôpital de Bicêtre
Le Kremlin-Bicêtre, Île-de-France Region, 94275, France
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Kitakyushu Municipal Yahata Hospital
Fukuoka, 805-8534, Japan
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Klinikum Oldenburg
Oldenburg, 26133, Germany
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Kurashiki Central Hospital
Okayama Prefecture, 710-8602, Japan
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Marien-Hospital Wesel gGmbh
Wesel, 46483, Germany
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Osaka University Hospital
Osaka, 565-0871, Japan
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Rigshospitalet
Copenhagen, 2100, Denmark
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The Children's Hospital at Westmead
Westmead, 2145, Australia
Conditions
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