New study tracks safety of ALS drug tofersen over 7 years
NCT ID NCT07259980
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looks at the long-term safety of the drug tofersen (Qalsody®) in people with a rare, inherited form of ALS called SOD1-ALS. Researchers will collect health information from about 125 participants in Europe and the US over at least 7 years. The main goal is to see what side effects occur, including serious ones, and to understand the participants' health over time. No new treatments are given—this is an observational study that follows patients receiving routine care.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
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The condition terms exactly as the trial's registrant entered them.
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Email: •••••@•••••
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Phone: •••-•••-•••• Email: •••••@•••••
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Mass General Hospital -MGH
RECRUITINGBoston, Massachusetts, 02114, United States
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