New hope for PNH patients: Long-Term drug safety trial underway

NCT ID NCT03531255

First seen Apr 08, 2026 · Last updated May 12, 2026 · Updated 5 times

Summary

This study looks at the long-term safety and effectiveness of pegcetacoplan in people with PNH, a rare blood disorder. Participants must have completed a prior pegcetacoplan study and shown benefit. The main goal is to track side effects over time.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • AZ Delta

    Roeselare, 8800, Belgium

  • Acibadem City Clinic Tokuda Hospital

    Sofia, 1407, Bulgaria

  • Alberta Health Services

    Edmonton, Alberta, T6G 2V2, Canada

  • Baptist Cancer Center

    Memphis, Tennessee, 38120, United States

  • CHRU de Lille

    Lille, 59037, France

  • Cancer Specialists of North Florida

    Jacksonville, Florida, 32257, United States

  • Centre Hospitalier Annecy Genevois - Site Annecy

    Pringy, 74374, France

  • Centre Hospitalier de Saint-Quentin

    Saint-Quentin, 02321, France

  • Centro de Investigacion en Hematologia Clinica del Centro Medico Corpac

    San Isidro, Lima region, 15047, Peru

  • Chungnam National University Hospital

    Junggu, Daejeon, 35015, South Korea

  • Cleveland Clinic

    Cleveland, Ohio, 44195, United States

  • Clinical Center of Serbia

    Belgrade, 11000, Serbia

  • Cliniques Universitaires Saint-luc

    Brussels, 1200, Belgium

  • Denver Health Medical Center

    Denver, Colorado, 80204, United States

  • Duke University Medical Center

    Durham, North Carolina, 27710, United States

  • Essen University Hospital Department of Hematology

    Essen, North Rhine-Westphalia, 45147, Germany

  • Hopital Saint-Louis

    Paris, 75010, France

  • Hospital Ampang

    Ampang, Selangor, 68000, Malaysia

  • Hospital Center Chalon Sur Saone William Morey

    Chalon-sur-Saône, 71100, France

  • Hospital Edgardo Rebagliatti

    Jesús María, Lima, 15072, Peru

  • Hospital Nacional Dos De Mayo - Centro de Investigación

    Lima Cercado, Lima region, 15003, Peru

  • Hospital Univ. de Gran Canaria Dr.Negrin

    Las Palmas de Gran Canaria, Canary Islands, 35019, Spain

  • Hospital Universitario "José Eleuterio González", UANL

    Monterrey, 64460, Mexico

  • Hospital Universitario Politecnico La Fe

    Valencia, 46026, Spain

  • IPS Centro Medico Julian Coronel SAS

    Cali, Valle del Cauca Department, 760035, Colombia

  • Investigative Clinical Research of Indiana

    Indianapolis, Indiana, 46260, United States

  • Japanese Red Cross Nagoya Daini Hospital

    Showa-ku, Aichi-ken, 486-8650, Japan

  • Juntendo University Hospital

    Bunkyō-Ku, Tokyo, 113-8421, Japan

  • Kinan Hospital

    Tanabe, Wakayama, 646-8588, Japan

  • Lakes Research

    Miami, Florida, 33014, United States

  • Leeds Teaching Hospitals NHS Trust

    Leeds, LS9 7TF, United Kingdom

  • Lyon Sud Hospital Center

    Pierre-Bénite, 69495, France

  • Maharaj Nakorn Chiang Mai Hospital

    Chiang Mai, 50200, Thailand

  • Makati Medical Centre

    Makati City, National Capital Region, 1229, Philippines

  • Mary Mediatrix Medical Centre

    Lipa City, National Capital Region, 4217, Philippines

  • NTT Medical Center Tokyo

    Tokyo, 141-0022, Japan

  • National Specialized Hospital for Active Treatment of Haematologic Diseases

    Sofia, 1756, Bulgaria

  • Northwestern University

    Chicago, Illinois, 60611, United States

  • Okayama University Hospital

    Okayama, 700-8558, Japan

  • Pavlov First Saint Petersburg State Medical University

    Saint Petersburg, 197022, Russia

  • Perpetual Succour Hospital

    Cebu, National Capital Region, 6000, Philippines

  • Phramongkutklao Hospital

    Bangkok, 10400, Thailand

  • Prince of Wales Hospital

    Hong Kong, Hong Kong

  • Queen Mary Hospital

    Hong Kong, Hong Kong

  • Ramathibodi Hospital

    Bangkok, 10400, Thailand

  • Royal Melbourne Hospital

    Melbourne, Victoria, 3000, Australia

  • Shinshu University Hospital

    Matsumoto, Nagano, 390-8621, Japan

  • Singapore General Hospital

    Singapore, 169608, Singapore

  • Siriraj Hospital

    Bangkok, 10400, Thailand

  • Songklanagarind Hospital

    Songkhla, 90110, Thailand

  • Srinagarind Hospital

    Khon Kaen, 40002, Thailand

  • St. Lukes Medical Centre

    Quezon City, National Capital Region, 1112, Philippines

  • Thammasat University Hospital

    Pathum Thani, 12120, Thailand

  • The Medical City

    Pasig, National Capital Region, 1604, Philippines

  • Therapeutic hospital of regional clinical hospital #1

    Tyumen, 625023, Russia

  • Toronto General Hospital

    Toronto, Ontario, M5G 2C4, Canada

  • Uniklinik RWTH Aachen

    Aachen, North Rhine-Westphalia, 52074, Germany

  • Universitatsklinikum Ulm

    Ulm, Baden-Wurttemberg, 89081, Germany

  • University Malaya Medical Centre

    Lembah Pantai, Kuala Lumpur, 59100, Malaysia

  • University Medical Center Hamburg-Eppendorf

    Hamburg, 20246, Germany

  • University of Calgary

    Calgary, Alberta, T2N 4Z6, Canada

  • University of Southern California

    Los Angeles, California, 90033, United States

Conditions

Explore the condition pages connected to this study.