Hemophilia a drug ADYNOVI under Long-Term safety review
NCT ID NCT04158934
First seen Feb 20, 2026 · Last updated May 07, 2026 · Updated 12 times
Summary
This study monitors 207 people with hemophilia A who are taking ADYNOVI/ADYNOVATE as part of their regular care. The goal is to track any long-term side effects, including problems with kidneys, liver, or nerves. It does not test if the drug works, but rather how safe it is over time in real-world settings.
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This is a summary of
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Azienda Ospedaliera Universitaria Policlinico Umberto I - Università di Roma La Sapienza
Roma, 00161, Italy
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Chang Gung Memorial Hospital, Linkou
Taoyuan, 333, Taiwan
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Clinical Hospital Sveti Duh
Zagreb, 10000, Croatia
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Debreceni Egyetem
Debrecen, 4032, Hungary
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Eszak-Pesti Centrumkorhaz - Honvedkorhaz
Budapest, 1134, Hungary
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Fakultni nemocnice v Motole
Prague, 150 06, Czechia
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Fondazione IRCCS CA' Granda Ospedale Maggiore Policlinico
Milan, 20122, Italy
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Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Roma, 00168, Italy
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Heim Pal Orszagos Gyermekgyogyaszati Intezet
Budapest, 1089, Hungary
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Hospital Regional Universitario de Malaga
Málaga, 29010, Spain
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Hospital Universitari Son Espases
Palma de Mallorca, Balearic Islands, 07120, Spain
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Hospital Universitari Vall d'Hebron
Barcelona, 08035, Spain
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Hospital Universitario La Paz
Madrid, 28046, Spain
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Hospital Universitario de Gran Canaria Dr. Negrin
Las Palmas, 35010, Spain
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King Chulalongkorn Memorial Hospital
Bangkok, 10330, Thailand
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Krajska zdravotni a.s. - Masarykova nemocnice v Usti nad Labem o.z.
Ústí nad Labem, 40113, Czechia
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Kyung Hee University Hospital at Gangdong
Seoul, 134-727, South Korea
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MacKay Memorial Hospital_Taipei Branch
Taipei, 10449, Taiwan
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Maharaj Nakorn Chiang Mai Hospital
Chiang Mai, 50200, Thailand
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Mohacsi Korhaz
Mohács, 7700, Hungary
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Pecsi Tudomanyegyetem Klinikai Kozpont
Pécs, 7624, Hungary
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Phramongkutklao Hospital
Bangkok, 10400, Thailand
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SHAT of Oncohaematology Diseases
Sofia, 1527, Bulgaria
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SRH Kurpfalzkrankenhaus Heidelberg GmbH
Heidelberg, Baden-Wurttemberg, D-69123, Germany
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Sahlgrenska Universitetssjukhuset
Gothenburg, 41345, Sweden
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Siriraj Hospital
Bangkoknoi Bangkok, 10700, Thailand
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Szabolcs-Szatmar-Bereg Varmegyei Oktatokorhaz
Nyíregyháza, 4400, Hungary
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Tri-Service General Hospital
Taipei, 11490, Taiwan
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UF Health Shands Hospital
Gainesville, Florida, 32610, United States
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Ulsan University Hospital
Ulsan, 44033, South Korea
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Universitaetsklinikum Bonn AoeR
Bonn, 53127, Germany
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University Medical Centre Groningen-UMCG
Groningen, 9713 GZ, Netherlands
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University hospital centre Zagreb
Zagreb, 10000, Croatia
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University hospital centre Zagreb
Zagreb, 1000, Croatia
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Vivantes Klinikum im Friedrichshain
Berlin, 10249, Germany
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Werlhof-Institut GmbH
Hanover, 30159, Germany
Conditions
Explore the condition pages connected to this study.