Life after brain inflammation: new study probes hidden scars of rare disease

NCT ID NCT07158229

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at the long-term social and emotional challenges faced by people who have had NMDA receptor encephalitis, a rare brain inflammation. Researchers will ask 30 adults to complete questionnaires about fatigue, anxiety, depression, sleep, and quality of life. The goal is to understand how the disease affects daily functioning and well-being years after the initial illness.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this study could reveal how NMDA receptor encephalitis affects patients' daily lives long after the acute phase, guiding better support and rehabilitation.
What could go wrong
This is a small observational study with only 30 participants, so findings may not apply to all patients. It relies on questionnaires, not treatments, so no direct medical benefit is expected.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER - Groupement hospitalier Est - Hospices civiles de Lyon

    RECRUITING

    Bron, 69500, France

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