Rare genetic disease under the microscope: no treatment, just answers

NCT ID NCT06217588

First seen May 11, 2026 · Last updated May 12, 2026 · Updated 1 time

Summary

This study aims to learn more about LCAT deficiency, a rare genetic condition that affects how the body processes fats. Researchers will collect medical records, blood and urine samples, and survey data from up to 40 participants over time. The goal is to track how the disease progresses, especially kidney problems, and identify biomarkers for future studies. No experimental treatments are given.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for LCAT DEFICIENCY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • University of Pennsylvania

    RECRUITING

    Philadelphia, Pennsylvania, 19104, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.